New research released reveals the alarming truth about the widespread prevalence of male urinary incontinence across Manchester, and the taboo causing silent suffering in men.
The report, Binning the taboo: disposing with dignity, reveals that nearly half (45%) of the men surveyed in Manchester, of all ages, have experienced symptoms associated with urinary incontinence. This is leaving all (100%) anxious to leave the house.
Co-authored by Prostate Cancer UK and phsGroup, it highlights how the new figures vastly exceed previous estimates about the prevalence ofurinary incontinence, which is anunder-researched problem.
Former studies estimated that onein 25 men over 40 will experience urinary incontinence in the UK every year, butthe comprehensive study – with a combined UK-wide audience of 4750 people including 2,000 general consumers, 2,000 men, 500 men living with urinary incontinence and 250 partners of men living with incontinence– paints a far bleaker picture and reveals the true extent of a condition impacting hundreds of thousands of lives. Furthermore, the new results show that almost one in five men (18%) in Manchester experience symptoms as early as 18-25 years of age, contradicting the assumption that the condition is only experienced by older adults.
The new data also shows how society’s awareness of prevalent men’s health issues is dangerously at odds with the reality. More than half of people from Manchester (57%) do not think men commonly experience urinary incontinence, despite hundreds of thousands dealing with the condition each year. Similarly, less than a third of people (30%) from Manchester knew that prostate cancer treatment can cause urinary incontinence in men, despite the fact that as many as one in two (60%) men who have their prostate removed (radical prostatectomy) may experience it.
One in eight men will get prostate cancer, rising to one in four for Black men. For the over 475,000 men living with or after prostate cancer in the UK, many will experience urinary incontinence as a side effect of treatment for the disease. Each year in England, more than 47,000 men are diagnosed with prostate cancer and more than 10,000 die from it – one man, every hour. More than 410,000 men are living with and after prostate cancer in England.
Of the men in Manchester who were asked about the challenges they face when using public washroom facilities:
· almost a third (29%) had found it hard locating a hygiene bin in a public toilet to throw away used incontinence pants and pads
· 100% feel anxious leaving home due to a lack of facilities
· 100% leave home less often, contributing to feelings of social isolation.
As a result, men are resorting to desperate strategies to overcome the near certainty that they will be unable to find somewhere appropriate to throw away used products after leaving home. These include taking a bag out with them that they can empty when back home (33%), asking their partner to keep them in their handbag (13%) or wearing the pads longer than advised (8%), which can cause further health risks. Almost two in five (38%) acknowledged that they have resorted to flushing them in the toilet.
Today, Prostate Cancer UK, thelargest men’s health charity in the UK, and the country’s leading hygiene services provider, phsGroup, launch the campaign, ‘Dispose with Dignity’. The campaign will tackle the taboo surrounding male incontinence, backed up by solid measures to ensure thatmen have proper access to essential facilities and products that will improve their quality of life, including changing HSE guidance to make it mandatory for at least one male incontinence bin to be present in public washrooms.
Nick Ridgman, head of health information and clinical support at Prostate Cancer UK, commented: “Incontinence affects hundreds of thousands of men across the country and is a frequent side effect of treatment for the most common cancer in men. Yet the research released today showcases a woeful lack of understanding and conversation that is impacting men’s mental and physical health, and has resulted in men not having the facilities they need to live life to the full. Together withphs Group, our “Dispose with Dignity” campaign will tackle that taboo, ensuring political decision-makers hear the voices of men across the country who want change. We look forward to working with phs Group to build a future where men’s lives are not limited by incontinence.”
A new, dedicated male incontinence bin has been designed byphs Group and Prostate Cancer UK, solving the dilemma men encounter in washrooms up and down the country, with several companies already pledging to provide them to their customers and staff. These include Moto service stations, the first ofphs’ customers to sign up to receive the bins, and Garic, a sustainable solutions provider to the construction industry with headquarters in Bury, Lancs.
Nick Tatum, chief customer officer at Moto, said:“Moto strive to provide a service that is inclusive of all and our partnership withphs will help us to achieve this. We want the very best for all of our customers and want to provide them with the dignity they deserve. We’re also incredibly proud of our colleagues and their commitment to providing an outstanding service, with zero tolerance for discrimination, to all of our customers.”
Neil Page, sales director at Garic, said: “We were blown away by the careful and considered approach phs has taken to this initiative and we’re really excited to be working in an exclusive construction partnership to support both our own colleagues and our customers. When you’re coming to work, you want to feel supported, looked after, and that your employer has your best interests at heart. So that’s why it’s important for us to provide dignity to those who need it, in a discreet way, behind the cubicle door in private.”
With over 120,000 customers in 300,000 locations,phshas a 60-year heritage in supporting businesses and organisations, and as such is uniquely placed to make an impact on the lives of men experiencing urinary incontinence. The campaign follows years of working to raise awareness of issues surrounding another taboo subject, period inequality.
Matt Brabin, chief executive officer of phs Group, added: “We hope this campaign isa catalyst for change, because it is past time that this conversation takes place.As a business, we are proud to be unafraid to shine a light on issues others might shy away from, and we are truly passionate aboutbreaking down barriers for men, so that they can access the basic hygiene facilities they need to live with dignity, as they should after receiving life-saving prostate cancer treatment.”
Prostate Cancer UK is also workingin collaboration with theAPPG for Bladder and Bowel Continence Care to support their ‘Boys Need Bins’ national initiative, in conjunction withBladder Health UK ,British Toilet Association,International Longevity Centre,Men’s Health Forum,Tackle Prostate Cancer and theTruckers Consortium. The campaign similarly aims to make a legislative change, calling for a dedicated incontinence bin in male toilets to give men the dignity of easy, hygienic and discreet disposal of incontinence pants and pads, stoma bags, wipes and other personal care products. To get the issue on the political agenda across the UK, Prostate Cancer UK is calling for men and those who love them to “make a change in under a minute” and send a pre-written letter to their local MP or political representative today calling for action. Visit their campaign page to find out more:https://prostatecanceruk.org/get-involved/campaigning/incontinence
